Dravet Syndrome Awareness Bracelets

Dravet syndrome, previously known as Severe Myoclonic Epilepsy of Infancy, is an intractable developmental and epileptic encephalopathy that begins in infancy and proceeds with accumulating morbidity that significantly impacts individuals throughout their lifetime. Dravet syndrome is a rare disease, with an estimated incidence rate of 1:15,700.

Dravet syndrome is classified as a developmental and epileptic encephalopathy, which is part of a group of severe epilepsies with frequent and difficult to treat seizures and significant developmental delays. Seizures in Dravet syndrome usually begin during the first 2-15 months of life, often in the presence of fever or warm temperatures. Seizures are frequently prolonged, and are not well managed with current medications. Patients present with a variety of seizure types that generally evolve with age.

Find this and more information on Dravet syndrome at www.dravetfoundation.org

By raising awareness of Dravet syndrome, we can increase knowledge, improve early diagnosis, help families get the information needed for care and reduce the feelings of isolation faced by patients and their families.

: PERSONALIZATION :

Any word or name can be added to the bracelet :) please use the personalization box to let me know what you would like the bracelet to say!

Thank you for helping me raise awareness one bracelet at a time!

: BRACELET SIZING :

The standard adult size for all bracelets is approximately 6.75 inches. If you need a custom size, please include it in the personalization box.

To measure your wrist, place a string around the wrist and then measure the string against a ruler.

*Standard size will be sent if no size is included in the personalization box*